Monday, June 18, 2012

Lymph Journal # 68 - Happy Father


6/18/2012

We’ll skip the dictation software today – too many spelling and syntax errors to make me want to use it for public consumption before I’ve mastered the necessary speech rhythms.

Yesterday was Father’s Day.  I have been enjoying the chance to be a father in direct contact with my four kids, my grandkids and others important in their lives.  I certainly “got what I wanted” for Father’s Day as Diane and I watched these four uniquely different young adults laugh and retell stories together as they remembered plenty of things that I’ve forgotten but find quite believable.  May you guys always be able to laugh at yourselves and each other in the best sense of laughter.  Also the game we played was hilarious.

I continue to get a kick out of the double-takes that happen when I see folks that I know well who don’t recognize the bald guy.  So many politely and dutifully give a weak “Hello” in response to mine and then a few beats later, sometimes with a hint or two, the “Hello” becomes much more heartfelt and genuine as they realize it’s the guy they’ve been praying for over the last five months.  It doesn’t take much to entertain me these days!

Speaking of prayer, I continue to be amazed at the number of people who tell me they’ve been in prayer on a regular basis.  Many have prayed daily.  Here’s the crazy part – I haven’t prayed daily for my situation.  Sometimes I haven’t had the strength to pray – at its’ worst I don’t think the “groanings” we utter when we don’t know what to pray for were even a bit out of reach.  Sometimes I forgot.  But all over the world are people who have upheld Diane and I every day.  That is way cool!

Recovery continues in fits and starts.  Early in our stay in RI for two days in a row I walked the Pier beach – something I so looked forward to and what I hoped would be some sort of equivalent to walking Kandern’s hills.  My legs were sore for a week.  Beach walking must use muscle groups in an entirely different way than “Nerdic” hill walking.  Late last week I began to notice a bit of strangeness in my lungs, a feeling almost like I had run a vigorous race in freezing cold weather and irritated my upper bronchial region.  It hasn’t passed yet and I’ve been a bit shorter of breath so I hope to get a chest X-ray, etc. later today to rule things in or out.  Research online certainly underscores that there can be complications of certain chemo drugs that impact the lungs and I’ve had a bunch of them.  My hope is that it’s actually some sort of treatable infection/disease rather than any kind of long-term damage.  We’ll see.

Thursday, June 7, 2012

Lymph Journal # 67 Back in the US of A


6/7/2012
 Well, after an uneventful journey, we made it back United States. “Uneventful, as far as I'm concerned, is a great word in the context of travel.   I tried to play the stem cell transplant low immunity card in order to upgrade to 1st class trick but it didn't work. 1st class apparently was already full. But we're able to sit together near the front of the plane and we only experienced just a little bit of turbulence. Our daughter Sam and Amanda were there to meet us at the airport. It was a bit of a gloomy day in Boston but the trip home was also uneventful.

 Jet lag has not been too much of a problem. I slept well for 3 nights now. I traveled with my mask and I don't seem to have picked up anything detrimental on the plane. My mom is been doing her best to set me up. Her best is pretty good. This morning I achieved one of my goals for the trip home. I took an early morning walk on the Narragansett pier beach. Fog covered the pier itself. But there was open sky to the East North East. I made it from the south end to the north end of the beach and back. Hopefully next time it will be a little bit warmer.

I'm trying a little experiment here. Trying to compose this on my new speech recognition software. It's a little bit awkward to begin with. But I hope this will streamline some of my writing in the future.

I feel very good. I appetite is terrific. More and more the side effects of chemo seemed to be slipping away. Of course I'm still pretty hairless. It's interesting how difficult it is for some people to recognize me. Without hair including eyebrows, people see a different face. It's kind of fun to play with. When you know they know you, but don't recognize you, you can have quite a bit of fun. I went to RadioShack on our first day home. The store is managed by a former student from the Narragansett Pier School.  The manager remembers me quite well with hair. He was busy with a long case when his associate asked if she could help me and I asked for the manager by name.  He kept giving me furtive glances while helping this couple. I could almost see him thinking who's this bald guy that knows me by name. When he was finally free to serve me, I of course asked him if he knew me. He didn't. Once I gave my name he did. This guy sets me up with a SIM card every summer. Of course he had the nerve to ask me at the end of the transaction, “Would you like to contribute to the LiveStrong foundation?” And I said it's quite unfair to ask the cancer patient that question. And then I contributed. We had a good laugh.

It's been great seeing all my kids in getting to know the grandchildren a little bit better. I look forward to much more of this on this trip. Our calendar is beginning to fill up with all sorts of visits and we do hope to see many people so please let us know if it would be convenient to visit with you.

Any weird sentence construction in this post can be attributed to my new dictation software – so far it’s not a timesaver but I trust, as we get to know one another, it will be.

Saturday, June 2, 2012

Lymph Journal # 66 - Another year wrapped!


6/2/2012

Today was graduation for BFA’s Class of 2012. This is a great bunch of kids and I so enjoyed my first semester teaching Worldviews with them.  I also benefited from their fine example of appropriate messages of comfort and encouragement throughout the treatments I endured over second semester.  
Class of 2012

Just a few of the grads lined up for commencement

 I couldn’t feel more proud or more fortunate to have them as a focus of ministry and vice versa.  We’ll always have Rome!  Congratulations to all sixty of you!!

Health wise I am doing great.  My white and red counts are back in the “normal” range and I’m getting my strength back.  I know I’m only supposed to boast in the Lord but Diane and I walked the “Lonely Tree” walk a few days ago.  It’s over 5km long and has some significant slope.  Wielding my Nordic (aka “Nerdic” – thanks for this perfect label Len Reed) walking sticks we completed it in the same time as last summer and fall (65 minutes – 5km=3miles – no brag, just fact!). 
That's the lonely tree hill - looks closer due to telephoto effect - it really is a rigorous hike!

 I’m eating without needing to do anything regarding nausea (Yipee!) and sleeping well at night. 

The day after tomorrow we, Lord willing, fly to Boston via London and arrive in RI early Monday evening.  We’ll be there for one month but we’re deliberately not doing the all out missionary deputation thing.  We’ll be mainly reconnecting with friends and family. I don’t know what it has been specifically like for family to experience my illness from afar but I know it has been difficult.  It will be so good to share recovery in person.  I’ll be working on recovering strength through a strict regimen of beach walks and seafood intake.  We certainly look forward to seeing many folks informally. We’re staying with my Mom (401.783.7255).

Well it’s a short update but that’s where we’re at.